Patient Experience

Why use patient-reported outcomes in dermatology

Dermatology is a specialty where measuring the severity and progression of conditions is seldom easy. There are few if any laboratory values to go by and the visible extent of disease often fails to correlate with its impact on a patient’s life. Patient-reported outcomes make it possible to measure the physical, psychological and functional impact of a skin condition systematically and between clinic visits.

What measures are out there?

There are a variety of measures available in dermatology, some of which assess general dermatology related quality of life and some that are condition specific. Perhaps the most recognized measures are the Skindex-29, Skindex-16 and the Dermatology Life Quality Index (DLQI). Condition specific measures include the Psoriasis Symptom Assessment (PSA) and the Psoriasis Disability Index (PDI), the Patient Oriented Eczema Measure (POEM) and the Acne Symptoms and Impact Scale (ASIS). Organizations such as the International Dermatology Outcome Measures (IDEOM) are working to develop and validate new measures in psoriasis and other dermatological condition.

Starting a program in your practice

Getting started is easy and we’d encourage you to register on the platform and start testing it with a few of your patients to get familiar. In order to stand up a comprehensive outcomes program we recommend a few key steps: 1) Define the goals of your program 2) Determine which patients will be eligible and how you might want to expand it over time 3) Choose the measures you want to use and the timing of the measures that get sent to patients 4) Enlist the help of the people in your practice who will be needed to register patients and explain the program to patients in your clinic 5) Configure your platform and go live 6) Improve and reflect.

Measuring Net Promoter Scores

Atopic dermatitis can be a chronic and debilitating illness, both physically and mentally. A forward thinking dermatology clinic decided to start tracking patient-reported outcomes between clinic visits. They chose to use the Skindex-16 measure at monthly intervals. Patients were recruited in the clinic and given a leaflet about the program and how the data would be used to better understand the nature of their condition and personalize treatment. Clinicians and the practice manager used the platform to identify patients who are on a downward trend and who would benefit from additional outreach. When these patients came in to the clinic, historic trends were viewed to help guide the consultation, focus attention on areas of need and understand the efficacy of past treatments. Through this program they’ve been able to boost patient satisfaction, attract & retain new patients and provide demonstrably better care.

Improving HCAHPS scores

Severe psoriasis is increasingly recognized as having important physical and psychosocial effects that extend beyond the skin. The arrival of biologic treatments has brought more options to those with severe disease, however with potentially serious side-effects and treatment costing up to $30,000 per year, the need to monitor efficacy has never been greater. A dermatology clinic that wanted to keep a closer eye on these patients chose to check-in with these patients bi-weekly using the Dermatology Quality of Life Index (DQLI). With the patient-reported data flowing back to the clinic, they were able to better identify primary and secondary treatment failure.


Mention some of the initiatives in the space

The payment landscape

Mention some of the initiatives in the space

Show me the research

Some important papers in the space

See a demo of a mock dermatology practice